Hi Margie, really sorry to hear about your troubles. I had Lyme back in the late 90s, thinking I caught it at a Boy Scout Camp with my son. My symptoms were very high temps off and on and just feeling incredible beat up. Wasn't sure what was going on, went to the dr and he said probably just a virus, I asked about West Nile and Lyme, the response was you do not have a "bulls eye" and West Nile was not that prevalent. Ok, after a weekend of 104 temps I went back in and said test me for both, yes the results were Lyme, forget the percentage of individuals that do not get the bull's eye but it is substantial.
I was put on a 3 weeks of antibiotics, which fortunately for me it worked, when the CDC is looking at the numbers, I always wondered why they are also not tracking the infections via Vets, which would give a better idea what the numbers are in the area.